Moving Center Stage: patients claim their role in healthcare
DOI: https://doi.org/10.7175/fe.v17i1.1240
Abstract
Keywords
Patient centricity; Patient and Public Involvement; Research and Development; Health Technology Assessment
References
- Balz V, Klöppel U, Hulverscheidt M, et al. Arzneimittel des 20. Jahrhunderts: Historische Skizzen von Lebertran bis Contergan (Science Studies) (Paperback)(German) - Common. Transcript Verlag, 2009
- Crimp D. Before Occupy: How AIDS Activists Seized Control of the FDA in 1988. The Atlantic 2011. Available at: http://www.theatlantic.com/health/archive/2011/12/before-occupy-how-aids-activists-seized-control-of-the-fda-in-1988/249302/ (Last accessed March 2016)
- Rosenberg W, Donald A. Evidence based medicine: an approach to clinical problem-solving. BMJ 1995; 310: 1122-6; http://dx.doi.org/10.1136/bmj.310.6987.1122
- Henshall C, Koch P, von Below GC, et al. Health Technology Assessment in Policy and Practice. Int J Technol Assess Health Care 2002; 18: 447-55; http://dx.doi.org/10.1017/S0266462302000302
- Cuche M, Beckerman R, Chowdhury CA, et al. Early dialogue with health technology assessment bodies: a European perspective. Int J Technol Assess Health Care 2014; 30: 571-8; http://dx.doi.org/10.1017/S0266462314000713
- EMA. European Medicines Agency – Patients and consumers. Available at: http://www.ema.europa.eu/ema/index.jsp?curl=pages/partners_and_networks/general/general_content_000317.jsp&mid=WC0b01ac058003500c (Last accessed March 2016)
- Hoos A, Anderson J, Boutin M, et al. Partnering With Patients in the Development and Lifecycle of Medicines: A Call for Action. Ther Innov Regul Sci 2015; 49: 929-39; http://dx.doi.org/10.1177/2168479015580384
- EULAR Secretariat, Switzerland. EULAR Standing Committee of PARE. Available at: http://www.eular.org/myUploadData/files/PARE_Values_Principles_web.pdf (Last accessed March 2016)
- Pushparajah D, Geissler J, Westergaard N. EUPATI: Collaborating between patients, academia and industry to champion the informed patient in medicines research and development. J Med Dev Sci 2015; 1 Available at http://jmds.whioce.com/index.php/journal-of-medicines-development/article/view/01011 (Last accessed March 2016)
- Forst T, Hohberg C, Schöndorf T, et al. Time-action profile and patient assessment of inhaled insulin via the Exubera device in comparison with subcutaneously injected insulin aspart via the FlexPen device. Diabetes Technol Ther 2009; 11: 87-92; http://dx.doi.org/10.1089/dia.2008.0039
- Holtorf AP, Palacios D, Brixner DI. The Role of Patients in Clinical Research and Evidence Based Decision Making as Reported Via a Survey of Patient Advocates. Value in Health 2014; 17: A435; http://dx.doi.org/10.1016/j.jval.2014.08.1119
- Buck D, Gamble C, Dudley L, et al. From plans to actions in patient and public involvement: qualitative study of documented plans and the accounts of researchers and patients sampled from a cohort of clinical trials. BMJ Open 2014; 4: e006400; http://dx.doi.org/10.1136/bmjopen-2014-006400
- Gamble C, Dudley L, Allam A, et al. An evidence base to optimise methods for involving patient and public contributors in clinical trials: a mixed-methods study. Southampton (UK): NIHR Journals Library, 2015
- Dudley L, Gamble C, Preston J, et al. What Difference Does Patient and Public Involvement Make and What Are Its Pathways to Impact? Qualitative Study of Patients and Researchers from a Cohort of Randomised Clinical Trials. PLoS ONE 2015; 10: e0128817; http://dx.doi.org/10.1371/journal.pone.0128817
- Carvel D. Patient-partners may be political correctness gone too far. BMJ 1999; 319: 783-4
- AFM-Téléthon. Available at: http://www.afm-telethon.fr/home (Last accessed March 2016)
- Dunkle M, Pines W, Saltonstall PL. Advocacy groups and their role in rare diseases research. Adv Exp Med Biol 2010; 686: 515-25; http://dx.doi.org/10.1007/978-90-481-9485-8_28
- Staniszewska S, Crowe S, Badenoch D, et al. The PRIME project: developing a patient evidence-base. Health Expect 2010; 13: 312-22; http://dx.doi.org/10.1111/j.1369-7625.2010.00590.x
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